Using family and staff experiences of a botulinum toxin ‐A service to improve service quality

ConclusionsAreas of importance identified by families relating to BoNT‐A treatment included acknowledgement of individual needs, care coordination, empowerment of families and patients, consistency in service delivery, and the distressing nature of appointment and decision‐making. Comparison of the data from the staff patient journey mapping and family interviews suggested that staff have a good but incomplete understanding of the factors important to families, highlighting the need for consumer engagement in establishing family‐centred care. The themes identified can guide the provision of family‐centred BoNT‐A injection clinics.
Source: Child: Care, Health and Development - Category: Child Development Authors: Tags: ORIGINAL ARTICLE Source Type: research