Evaluation of the New North Carolina Burn Registry

The objective of this evaluation was to review the literature for best practices in designing a disease registry, benchmark the design of the NC burn registry with the best practices identified in the literature, and compare data quality before and after implementation of the new NC burn registry. The NC burn registry was evaluated using six measurable elements identified from essential indicators of the Agency for Healthcare Research and Quality user’s guide for design, implementation, analysis, interpretation, and quality evaluation of registries. These elements were achieving objectives, using literature to inform the choice of data elements, improving completeness of information, employing consistency checks, providing clear, operational definitions of outcomes and other data elements, and minimizing active data collection. Five of the six chosen essential elements were found to have been met during the evaluation of the new NC burn registry. One essential element, improving completeness of information, had mixed results. The new NC burn registry improved reporting to the National Burn Repository while maintaining current functionality and preserving previously collected data.
Source: Journal of Burn Care and Research - Category: Rehabilitation Tags: Original Articles Source Type: research