Insights into BRCA1/2 Genetic Counseling from Ethnically Diverse Latina Breast Cancer Survivors

AbstractDespite the disproportionate underuse of genetic counseling and testing forBRCA1/2 (BRCA)-associated hereditary breast and ovarian cancer (HBOC) risk among Latinas, little is known about the associated barriers and facilitators. We conducted in-depth qualitative interviews with 20 at-risk Latina women from diverse backgrounds. Eligible women were diagnosed with breast cancer<50  years, with or without a family history of breast and/or ovarian cancer (>1 first-degree relative diagnosed<50  years). All interviews were conducted in Spanish, audio recorded, transcribed, and translated into English. Two bilingual coders used thematic analyses to identify 7 main themes. Results revealed very low levels of awareness and knowledge about HBOC andBRCA genetic counseling. Interestingly, for most Latinas, competing life demands and cultural concerns (fatalismo anddestino) did not strongly influence personal beliefs about genetic counseling. In addition, older women were equally as interested in education, cancer prevention, andBRCA genetic counseling as younger women. These findings suggest that Latinas, regardless of age, increasingly acknowledge and prioritize their own health. Women reported their main motivator to undergo counseling was concern about family members ’ cancer risks. Main barriers included financial and insurance concerns, and lack of awareness about genetic services. Investigating the beliefs and attitudes of diverse populations of Latinas at risk ...
Source: Journal of Genetic Counseling - Category: Genetics & Stem Cells Source Type: research