Your Role in the Precision Medicine Initiative Cohort Program

Last month, on the PNR Rendezvous, the guest speaker was Malia Fullerton, Associate Professor of Bioethics and Humanities at the University of Washington School of Medicine and Adjunct Associate Professor in the UW Departments of Epidemiology and Genome Sciences, who informed the audience in regards to the Precision Medicine Initiative Cohort Program. This program has since been renamed the All of Us Research Program. The name reflects how All of Us will come together to change the future of health care. Many in the general public may not know much or anything about the Precision Medicine Initiative and may be even less aware of the All of Us program despite the fact that the National Institutes of Health is seeking one million volunteer to participate starting early 2017. Participating in health studies has not always been a smooth road for participants who may not always understand the release forms they are signing despite steps taken to ensure what their participation means. Sometimes these studies have led to providing information for other uses than was originally understood leading to legal steps, anger, and distrust. This has happened in some populations and communities where government relations are already fragile due to historical events. Fullerton’s presentation provided information on some of these historical cases as a way to provide context regarding the All of Us Program. The Precision Medicine Initiative is seeking to provide unique health...
Source: Dragonfly - Category: Databases & Libraries Authors: Tags: Health Literacy/Consumer Health Public Health Public Libraries Source Type: news