Bronchoscopy Question

My 17 month old son has a CRMS dx (df508 + a "varying consequence" mutation and negative sweat). We switched clinics about 4 months ago. Our new clinic felt that my son's health history and culture history warranted a bronchoscopy. Last Wednesday he had the bronch as well as an endoscopy and an Infant PFT. Normally they have you return 2 weeks post procedure but because of the holiday it looks like we may not be getting in until sometime next month. I've asked the nurse to talk to our pulm about getting us results over the phone at least - we'll see if it happens - but in the meantime I have a couple questions about the limited information I do already know about his results and I was hoping someone could help give me some ideas of what this could indicate. So the first thing they did was an infant PFT under sedation. His pulmonologist told me that he was "confused" by my son's scores (indicating they were lower than he thought they would be BUT he did not tell me any of the numbers). He said that following the PFT they put him under general anesthesia for the bronch - and it appears he had some issues with the anesthesia which I guess is not that uncommon with these kids? But he needed albuterol at that point to help his airway stop constricting. Anyhow, the pulm said that there was a significant amount of inflammation in his left small airway. He seemed to be surprised by that. My son is already on twice daily nebulized pulmicort but we also got s...
Source: Cystic Fibrosis Families Forum - Category: Respiratory Medicine Authors: Tags: Families Source Type: forums