Can someone help with next steps...scared mom here

Hi All, Please forgive my frequent posting lately. My 8yr old just came home from the hospital this afternoon. Here is a timeline of events up to this point. PFTs have slowly declined over the last few months. Culture shows an abundance of staph and she is put on Augmentin. Does nothing and PFTs do not go up. CT scan shows infection, loss of elasticity, and mucus build up in the lung tissue. I am told the CT scan actually looks better than PFTs would indicate. Last Friday she goes in for a PICC and bronch. Bronch shows normal lungs. The doctor who did it said her lungs look great. No inflammation, no mucus. Pretty normal lungs. Bronch can only go so far so they do the saline wash and suck out the fluid. They expect to find some hard pieces of mucus from the lower lung tissue but there is none. So far the fluid is only growing the normal staph. I was expecting pseudonomas but nothing yet. I have been told that we could wait up to six weeks for something to show up on the culture. Over the weekend in the hospital she had increased chest pt/vest with nebs and started IV antibiotics. Still not coughing up anything. Lungs sound nice and clear. She goes for follow-up next week. Our hope is the PFTs go up. They may not be back to baseline but there should be some serious increase. So why am I scared? What happens if, after all of this, her PFTs do not go up? The nurse practitioner I spoke with today said she doesn't know and would have to wait to speak wi...
Source: Cystic Fibrosis Families Forum - Category: Respiratory Medicine Authors: Tags: Families Source Type: forums