Mirta Santos

Mirta Avila Santos, MD, joined the American Behcet’s Disease Association (ABDA) in 2011. She became the executive director of the organization in 2012. She is passionate about improving the lives of patients living with autoimmune diseases, rare diseases and Behcet’s Disease in particular. Under her guidance, the ABDA has expanded the mission of the organization, and has partnered with other patient advocacy organizations to provide better access and improved care for patients. Her research background has contributed to research efforts for patients with Bechet’s. Her past experience includes clinical research at Rush Presbyterian St. Luke’s and at West Suburban Hospital in the state of Illinois.  She was the clinical research coordinator at the Rochester Rheumatology Research Center for 12 years.  She serves as the “firewall” for a biomarkers study focusing on Behcet’s Disease in partnership with Keck Graduate Institute and the ABDA. Dr. Santos is a moderator for Behcet’s Syndrome on RareConnect, works closely with NORD’s membership board, with the Rare Disease Legislative Advocates (RDLA), and recently received one of the DIA’s Patient Advocate Fellowship Awards.  She volunteers her time as a patient advocate and works with patients, legislators and pharmaceutical industry.  Conversations Contributors
Source: PHRMA - Category: Pharmaceuticals Authors: Source Type: news