question about sweat test results

Hello everyone, my 11 week old daughter was recently diagnosed with c.f. and I had a question about the sweat test. First a little background - at 2 1/2 weeks old our ped gave us the news that our daughter's prenatal screening had found she had 2 gene mutations (the d508 one and another that only one other person has ever been diagnosed with 1331n). They then made us wait til she was 12 pounds to get the sweat test. So earlier this week we had the test done and her levels were at 102, which the doctor said was very high and definitely positive. He said that the levels don't necessarily determine how severe a person's symptoms may be, but it still scares me. Right now she is mostly doing fine except she isn't gaining weight as much as she was at first (she's still gaining the normal amount per day, though now just barely). She's also extremely gassy and uncomfortable and spits up a lot. The doctor has prescribed her aquadeks, vit d (which she was already on because I breastfeed), creon, zantac, and 1/8th tsp of salt. Anyways back to my original question - for those of you living with c.f. have you noticed any correlation between very high sweat chloride levels and severity of symptoms? Thanks for taking the time to read this, I know it's a long post. I'm just very scared for my daughter and trying to cope with the news
Source: Cystic Fibrosis Newly Diagnosed Forum - Category: Respiratory Medicine Authors: Tags: Newly Diagnosed Source Type: forums