mom of a 16 yr old daughter

Junior Member Join DateFeb 2014Posts1 Hi I am also new to this site. I am a mom of a 16 yr old daughter. She has ddf508, mostly weight issues. She is 5'2, 94 lbs. She has a g tube and takes 2-3k calories at night. She also does hyper tonic, pulmozyme, albuterol and the vest. Her dr says she has very mild chrons, but she never has any symptoms and hasn't taken the pentasa for a while. She has maintained her weight and height and fev of 72-4 for the past yr without any hospitalizations. They want her to be at 100lbs. I feel like her GI dr always wants to do unnessecary tests. Now he is saying her lack of weight gain could be inflammation in the intestines, and want another colonoscopy. I think that is not needed and she could just eat breakfast before school and a better lunch after school. She currently just snacks at school.What are you opinions?
Source: Cystic Fibrosis Teenagers and Young People Forum - Category: Respiratory Medicine Authors: Tags: Teenagers and Young People Source Type: forums