Mac

I am a long time viewer, but first time writer on this site. My daughter- age 12, who has CF, just cultured positive for M. Avium complex (MAC) NTM for the third time in 12 months. I was told by the doctor two months ago, that if she cultured positive again that we could have a discussion on a way forward. Until last year, her PFTs were above 100%. 6 months ago, they went down to 80% and last month they were 90% -- better, but not back at her baseline. She is an active girl - swims and plays tennis competitively year round and generally feels very good. She has only been hospitalized once for pseudomonas, also in the last year. After looking online, it looks like the jury is out on whether or not to pursue aggressive treatment. In the past, we have favored being aggressive with treatments, but long term IV antibiotics could significantly impact her day-to-day life -- she gets a lot of happiness being in these activities with her friends. Of course, her long term health is most important. Wondering if anyone else in similar situation, or any advice? Thank you!
Source: Cystic Fibrosis Families Forum - Category: Respiratory Medicine Authors: Tags: Families Source Type: forums